What a day! Froze in at home with the whole family. It is supposed to be a good thing to get to miss school and work and it was the worst day ever. I can't wait to go back to work and the kids are happy about going back to school. OH to find the patience for a 3 year old.

Little bit of good new on Ella
Wednesday, January 28, 2009

news from the geneticist...
Dr Kayser called and said they got some of the results back from the biopsies. He said the muscle tested perfectly normal and the liver was sick, which we knew, but the pathologist said that he couldn't appreciate the mitochondrial DNA depletion from the liver itself, and if he didn't know of the family history of this he would diagnose as galatosemia. They do test for this as newborns, but he said if it came back borderline, they may have thought nothing about it. So he is requesting her newborn screens from SJ tulsa and I am taking her to his office tomorrow for her weekly lab as well as the test for this. I am trying to take this as good news, I know that both the babies before were also tested for this and it turned out to be the other.. so I am undoubtly still wary to shed my fear.. if it is by chance the galactesemia, we are not sure yet if the liver could correct itself or if a transplant or other treatment may be necessary. It depends on the damage done.. So we are still waiting and praying and thinking positive thoughts. I love her so much and just want a miracle to happen and just wake up one morning and everything be perfect.. BUT as I have said before, we will do whatever it is that we need to do to get her better. as long as there is breath in my body, I'll never give up on her..good news on Ella!

It is 9:00 pm and finally every one has gone to bed! Oh the silence can be such a blessing. Sarah cheered at her last game for the year. She did great even though she was having a sneezing fit. Jeff picked up Heath so he could come home and ride his John Deere Tractor. Heath loves John Deere. It was great that he got to spend some time with his Daddy. Nicholas and Sarah also enjoyed the attention they got when Heath was with his Daddy. Very hard to balance my attention so that each kid feels as special as the other. Very tired, better go pack Sarah's bag. The big kids have to go to their Dad's this weekend.

Baby Ella is home! Praise the Lord!

I have a little cousin who is very sick . She needs your prayers. Her name is Ella. Please pray for a miracle!